The 38-year-old mum-of-two wants readers to know what life is really like on the waiting list. Here she explains how her condition affected her this week.
This week, she comes down with Campylobacter.
WOKE up twice in the night with cramps and feeling sick. The oxygen had fallen off my nose and was wrapped around my neck, I unravelled the tube and made it to the toilet. Image, if you can, walking everywhere with a garden hose attached to your nose – although obviously smaller. Everywhere you go you have to make sure that you don’t get the tube stuck under doors, you try not to get kinks in the tube but everyday there are umpteen kinks in the tubes which the fairies must have knotted together in the night! You are permanently attached to a machine.
Go here for more of Helen’s diary entries.